Next week the Society is sponsoring a live web forum about CCSVI at the AAN – the panel includes the big names in the CCSVI world. I hope that real, hard questions come in, and not just bashing. I'll be there fielding them! I feel like we’re bringing huge resources within reach of people who have questions – it’s not really about the Society. Many of the bloggers that I correspond with have posted the forum registration link; Wheelchair Kamikaze expanded and provided his opinion on the intent of the Society and the opportunity. I appreciate his balanced perspective and candor! Marc wrote:
I spoke with one of the higher-ups at the Society's national headquarters last week, and in the course of our conversation she told me quite emotionally that she and everyone she works with would gladly give up their jobs to find the cure for MS. Cynic that I am, I acknowledge that's just what a person in that position should say, but my gut feeling was that the person on the other end of the line was speaking from the heart, and genuinely felt the tremendous burden of the destructive force that MS has on so many good people.
I spoke with Marc the week before last, or was it last week… I don’t know, time flies. Though I don’t consider myself a higher-up at the Society, I do work at the national headquarters and I said what he indicates. And it’s the truth, obviously. I hate multiple sclerosis. I want nothing more than for it to be gone forever so that NO family ever again has to go through what mine or Marc’s has and is. I do not speak or blog on behalf of the Society – this is all my personal opinion.
I’m going to New York next month to visit my sister and her family and hoping I can catch lunch with Marc while there.
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